Autumn 2020 in Photos

Here are some representative photos from September through November...starting from the most recent and working backward because that's apparently how my phone and computer are working today, lol. Enjoy!!

Having a BALL in our swimming pool
ball pit that we keep in the basement!

Happy Thanksgiving! 

Look how open and flat her hand is!!!
 Remember her clenched fists at birth?!

Practicing sitting...we still can't leave
her because she is totally unpredictable,
 but she's getting there!

Resting before our big day of back-to-back
 appointments (details in previous blog post).

Our little Trisomy Rule Breaker
 enjoys playing in her perimobile device!

Snuggle time with Grandma J

Daddy took the kids to the pumpkin patch.
The corn pit was a favorite place for Verity!

This is the first day with our new perimobile device!
 Many people helped us out with our fundraiser.

At preschool, Verity has the opportunity
 to use lots of cool toys.

More practice with sitting unassisted...
this little piano is a huge motivator,
as Verity enjoys the sounds she can make on it.

November News

2020 seems to be flying by! I guess that's a good thing for most of us! Here's a quick rundown of Verity's recent medical checkups...

UROLOGY:

You may remember poor li'l Verity had 6 UTIs in the February - September time frame. After her last one (diagnosed 9/10/20), following her 10-day stint of antibiotics, the doctor put her on a prophylactic dose (preventative) twice a day. When we saw the urologist on November 18, things were looking good! He dropped her prophylactic to just once a day, with a slight adjustment for her weight gain. Verity's weight is now at 25 pounds, 12 ounces, length just about 35 inches. Since her recent abdominal scans looked good, we are all content with not having any more immediate follow-ups, just returning to our regular schedule of checking in with him every 3-6 months unless we somehow have another UTI.

NEUROLOGY:

This consultation came as a result of Verity having her first seizure in September, which coincided with the onset of her 6th UTI. To our knowledge, there has not been a repeat of this incident--and she is very carefully monitored day and night (at least with machines, even on the nights we have no nursing and rely on our parental instincts and alarms!). Basically, the neurologist told us Verity gets a big fat PASS because of her genetic condition PLUS having the infection present with the one event. This means she isn't going to jump into putting Verity on any medications, which is just fine with us. However, we did discuss in detail what to look for and what to do if something like this happens again. Also, she gave us a prescription for a rescue medication to have on hand (one for at home, one for our diaper bag) in case there is an emergency and Verity has a seizure she doesn't come out of within five minutes. Just having that sets my mind at ease, because even though we haven't seen any evidence of seizure activity, we know it can become a severe problem for many Trisomy kiddos.

UPCOMING APPOINTMENTS:

Orthopedic/Clubfoot Clinic

Opthalmology 

Gastro/Dietitian

Thank you for following our journey and caring about our girl!