My soul melts away for sorrow; strengthen me according to your word!

This is my comfort in my affliction, that your promise gives me life. (Psalm 119:28, 50 ESV)

Monday, January 25, 2021

A Special Pregnancy Journal

Recently I started a private support group for mamas who receive a prenatal diagnosis. In putting together resources for them, such as a place they can access medical research for themselves and their health care providers (who often don't have personal experience with the kinds of diagnoses the parents receive for their child), I realized there was absolutely nothing out there for those mamas in the way of a pregnancy journal. All the ones I found were happy, happy, joy, joy. Having been through a pregnancy fraught with anxiety and fear over whether we would meet my daughter alive or not, I decided it was time to create a special journal that would address the different aspects of this unique situation. While some aspects allow mamas to focus on the joy of a new life and the positive aspects, other sections help them work through difficult topics such as what in the world to do about a baby shower and how to formulate a birth plan.

The journal may be purchased here (where you can also get a sneak peek at the inside by clicking on the image) and would make a wonderful gift for anyone you know who is devastated to receive a prenatal diagnosis. I would love to get it in the hands of genetic counselors, palliative care teams, pregnancy resource centers, and other professionals who work with women who are carrying fragile babies. If this is you, or if you know of someone who ministers in this capacity, would you reach out? We would be happy to discuss options for bulk ordering to make this resource accessible to others! 

Contents include: 

  • Journaling pages plus prompts to help you remember details
  • Space to record your baby's diagnosis and unique needs
  • Appointment trackers
  • Ultrasound photo keeper
  • Ideas for a baby shower
  • "Letters to My Baby" section
  • Birth Plan Brainstorming
  • Hospital Checklist
  • And much more.

Friday, January 1, 2021

Worth It

Two of my dear friends in the Trisomy community have had to say goodbye to their little girls in the last couple of days, and devastating doesn't begin to describe it.

I'm not going to lie...this journey is not for the faint of heart.

You learn to love and let go and it never, ever gets any easier.

You get close to families, follow their journey, find hope and light and joy and encouragement.

And then in the blink of an eye something happens...

And you're crying your eyes out in your closet, heart-wrenching sobs because a child who was doing so well is suddenly with Jesus and a friend's arms are empty and her heart is aching.

You know in your heart that heaven is where our children are healed and made whole for eternity, that they are dancing with Jesus and waiting for the day we will be reunited.

But.

The ache is still there.

And though we get pretty good about pushing the fear and the worry behind us, living in the moment and appreciating what we have, it's times like these that remind us...

Our child could be next. 

I hate that this is the case. I hate that I can't make it better for anyone else on this journey. I hate that no one can give us any guarantees. I hate that in the 4 years I have known what a rare trisomy diagnosis is and what it means, I have watched literally dozens and dozens of little ones leave this earth.

It hurts. A lot.

And yet...our lives are richer BECAUSE we are part of this community. The joys and triumphs and milestones--they are all the sweeter because of the difficulties. The friendships and community we've forged are so precious and valuable and LIFE-giving. 

To my friends who are new to this life, to those who have just received a diagnosis for their little ones...I hope seeing posts of loss and sorrow do not cause you too much angst and grief, although it's understandable that they do. I hope you see the hope and the beauty, the joy and the sacredness of this calling we each have, the call to love and care for a vulnerable little one. Because it's there, it truly is! 

Lots of hope. 
Lots of joy. 
So much love. 
So many precious memories and moments.

It's worth it. So very, very worth it.